The power of intuitive understanding will protect you from harm until the end of your days.
Offering care means being a companion, not a superior. It doesn’t matter whether the person we are caring for is experiencing cancer, the flu, dementia, or grief.If you are a doctor or surgeon, your expertise and knowledge comes from a superior position. But when our role is to be providers of care, we should be there as equals.
Even though people experiencing dementia become unable to recount what has just happened, they still go through the experience—even without recall. The psychological present lasts about three seconds. We experience the present even when we have dementia. The emotional pain caused by callous treatment or unkind talk occurs during that period. The moods and actions of people with dementia are expressions of what they have experienced, whether they can still use language and recall, or not.
Butterfly KissesAged imperfectionsstitched upon my faceyears and years of wisdomearned by His holy grace.Quiet solitude in a humble homeall the family scattered nowlike nomads do they roam.Then a giftsent from abovea memorypure and tangiblewrapped in innocence andunquestioning love.A butterfly kisslands gently upon my cheekfrom an unseen childa kiss most sweet.Heaven grants graceand tears followas youth revisitsthis empty hollow.
When a fine old carpet is eaten by mice, the colors and patterns of what's left behind do not change,' wrote my neighbor and friend, the poet Jane Hirschfield, after she visited an old friend suffering from Alzheimer's disease in a nursing home. And so it was with my father. His mind did not melt evenly into undistinguishable lumps, like a dissolving sand castle. It was ravaged selectively, like Tintern Abbey, the Cistercian monastery in northern Wales suppressed in 1531 by King Henry VIII in his split with the Church of Rome. Tintern was turned over to a nobleman, its stained-glass windows smashed, its roof tiles taken up and relaid in village houses. Holy artifacts were sold to passing tourists. Religious statues turned up in nearby gardens. At least one interior wall was dismantled to build a pigsty.I've seen photographs of the remains that inspired Wordsworth: a Gothic skeleton, soaring and roofless, in a green hilly landscape. Grass grows in the transept. The vanished roof lets in light. The delicate stone tracery of its slim, arched quatrefoil windows opens onto green pastures where black-and-white cows graze. Its shape is beautiful, formal, and mysterious. After he developed dementia, my father was no longer useful to anybody. But in the shelter of his broken walls, my mother learned to balance her checkbook, and my heart melted and opened. Never would I wish upon my father the misery of his final years. But he was sacred in his ruin, and I took from it the shards that still sustain me.
Psychologist: "This, ah, is a new sort of, ah, psychopathology that we're only now beginning to, ah, understand. These, ah, super-serial killers have no, ah, 'type' but, ah, rather consider everyone to be their 't
And sometimeswhen she does remember,she calls me her little angeland she knows where she isand everything is all rightfor a second or a minuteand then we cry;she for the life that she lostI for the woman I only know about through the stories of her children.
What made Olive the saddest about the Gardners was that everyone wanted to be enshrined in someone’s memory. It was the only way of living on after death, really: in the minds of loved ones. Memories were the only things that made aging bearable, a way of reverting to better, simpler days.
The evening's light, silvery, casts its dull brightness onto the trees--trees gelid in this blue light of winter. But whiteness dominates with the pines and evergreens steeped in vibrant grades of silver. I hear notes in the mist, like silvery chattering, coins in a pocket, the jangle of keys. Pg 217
looking at my reflection, in the window opposite, hollow and translucent, I see a woman disappearing. It would help if I looked like that in real life – if the more the disease advanced, the more ‘see-through’ I became until, eventually, I would be just a wisp of a ghost. How much more convenient it would be, how much easier for everyone, including me, if my body just melted away along with my mind. Then we’d all know where we were, literally and metaphysically.
[Memory]... is a system of near-infinite complexity, a system that seems designed for revision as much as for replication, and revision unquestionably occurs. Details from separate experiences weave together, so that the rememberer thinks of them as having happened together. The actual year or season or time of day shifts to a different one. Many details are lost, usually in ways that serve the self in its present situation, not the self of ten or twenty or forty years ago when the remembered event took place. And even the fresh memory, the 'original,' is not reliable in a documentary sense....Memory, in short, is not a record of the past but an evolving myth of understanding the psyche spins from its engagement with the world.
There is a duality to darkness known only to those who’ve been infected by its touch. Everyone knows the shadows: shallow, comfortable, mostly harmless places where one might nest for a night. But the depths of living pitch only visit the aristocracy of madmen and women who’ve unwittingly pledged fealty to the curse. For some, it outright ruins minds like a hound to fresh meat; for others, it wanes into the deepest parts of its less caustic sibling and waits for the time to strike, returning periodically through life like an incurable disease.
Many caregivers share that they often feel alone, isolated, and unappreciated. Mindfulness can offer renewed hope for finding support and value for your role as a caregiver…It is an approach that everyone can use. It can help slow you down some so you can make the best possible decisions for your care recipient. It also helps bring more balance and ease while navigating the caregiving journey.
And while a bald head and a looped ribbon were seen as badges of courage and hope, her reluctant vocabulary and vanishing memories advertised mental instability and impending insanity. Those with cancer could expect to be supported by their community. Alice expected to be an outcast.
Last Comforts” was born when one nagging question kept arising early in my journey as a hospice volunteer. Why were people coming into hospice care so late in the course of their illness? That question led to many others that rippled out beyond hospice care. Are there better alternatives to conventional skilled nursing home operations? How are physicians and nurses educated about advanced illness and end-of-life care? What are more effective ways of providing dementia care? What are the unique challenges of minority and LGBT people? What is the role of popular media in our death-denying culture? What has been the impact of public policy decisions about palliative and hospice care? The book is part memoir of lessons learned throughout my experiences with patients and families as a hospice volunteer; part spotlight on the remarkable pathfinders and innovative programs in palliative and late-life care; and part call to action. I encourage readers – particularly my fellow baby boomers -- not only to make their wishes and goals clear to friends and family, but also to become advocates for better care in the broader community.
Those whose lives have been an exercise in the pitting of their wits, or the selling of their talents, time and strength, to those who pay the piper, can even in their old age, even with their wits partially gone, automatically practise defences, and appeal for aid. But not so those who have never asked, who have never bargained.
Science experiments have found that people who practice meditation release significantly lower doses of cortisol, known as the stress hormone. This is consequential because frequent release of cortisol can lead to heart disease, diabetes, dementia, cancer, and depression.
She could have rambled with all the fervor of a woman who had loved one entity for longer than most races live, and with the inviolable, unquestioned certainty found in dementia. There were references dated and sealed with meticulous care which she would have enthusiastically opened with the mirth of one proclaiming a lifetime of honors and awards. But that singular event was freshly disturbed; its pores still drifted on the faint zephyr of remembrance.