The thing is, there is no certainty in this life - in one second your entire world could shift. I'm not saying it will, but I am living proof that It can. We never prepare for tragedy and that's a good thing but my god what's it's taught me is how little we appreciate what we have or some cases once had.
The secret of making lasting change is to acknowledge and accept that real change takes time and patience. We didn't get chronically ill overnight. We didn't gain weight in one week or even one month. Good chance, it may take us longer than twenty-one days to overcome whatever we're facing. Whether it's something physical, emotional, spiritual, or a combination, we may need to be realistic in our goals for meaningful change to happen. The first step is getting started!
Appearing nude on film was not easy when I was twenty-six in Body Heat; it was even harder when I was forty-six in The Graduate, on the stage, which is more up close and personal than film. After my middle-age nude scene, though, I unexpectedly got letters from women saying, "I have not undressed in front of my husband in ten years and I'm going to tonight." Or, "I have not looked in the mirror at my body and you gave me permission."These affirmations from other women were especially touching to me because when I began The Graduate I'd just come through a period when I felt a great loss of confidence, when my rheumatoid arthritis hit me hard and I literally couldn't walk or do any of the things that I was so used to doing. It used to be that if I said to my body, "Leap across the room now," it would leap instantly. I don't know how I did it, but I did it. I hadn't realized how much my confidence was based on my physicality. On my ability to make my body do whatever I wanted it to do.I was so consumed, not just by thinking about what I could and couldn't do, but also by handling the pain, the continual, chronic pain. I didn't realize how pain colored my whole world and how depressive it was. Before I was finally able to control my RA with proper medications, I truly had thought that my attractiveness and my ability to be attractive to men was gone, was lost. So for me to come back and do The Graduate was an affirmation to myself. I had my body back. I was back.
Mental illness People assume you aren’t sick unless they see the sickness on your skin like scars forming a map of all the ways you’re hurting. My heart is a prison of Have you tried?s Have you tried exercising? Have you tried eating better? Have you tried not being sad, not being sick? Have you tried being more like me? Have you tried shutting up? Yes, I have tried. Yes, I am still trying, and yes, I am still sick. Sometimes monsters are invisible, and sometimes demons attack you from the inside. Just because you cannot see the claws and the teeth does not mean they aren’t ripping through me. Pain does not need to be seen to be felt. Telling me there is no problem won’t solve the problem. This is not how miracles are born. This is not how sickness works.
The disaster, as Dad and others saw it, was the emerging AIDS crisis and the cultural attacks instigated by conservative against gay men and women in the early 1980s. It was found in the cruel indifference of President Ronald Reagan, who wouldn’t publicly address the epidemic until the end of his second term, after twenty thousand Americans had died, and the hostile rhetoric of conservatives close to Reagan like Jerry Falwell, founder of the Moral Majority, and Pat Buchanan, Reagan’s future speechwriter. In 1983, Buchanan wrote of AIDS, “The poor homosexuals–they have declared war upon nature, and now nature is extracting an awful retribution.
Of course, it’s now obvious why he was so angry that day. People don’t move into hospice to live but to die. And that half an egg sandwich I ended up making him–that sandwich was the last meal he ate in our Haight-Ashbury apartment, our one true home.
My name is CRPS, or so they say But I actually go by; a few different names. I was once called causalgia, nearly 150 years ago And then I had a new name It was RSD, apparently so. I went by that name because the burn lived inside of me.Now I am called CRPS, because I have so much to say I struggle to be free. I don't have one symptom and this is where I change, I attack the home of where I live; with shooting/burning pains. Depression fills the mind of the body I belong, it starts to speak harsh to self, negativity growing strong.Then I start to annoy them; with the issues with sensitivity, You'd think the pain enough; but no, it wants to make you aware of its trembling disability. I silently make my move; but the screams are loud and clear, Because I enter your physical reality and you can't disappear. I confuse your thoughts; I contain apart of your memory, I cover your perspective, the fog makes it sometimes unbearable to see. I play with your temperature levels, I make you nervous all the time - I take away your independance and take away your pride.I stay with you by the day & I remind you by the night, I am an awful journey and you will struggle with this fight. Then there's a side to me; not many understand, I have the ability to heal and you can be my friend. Help yourself find the strength to fight me with all you have, because eventually I'll get tired of making you grow mad. It will take some time; remember I mainly live inside your brain,Curing me is hard work but I promise you, You can beat me if you feed love to my pain. Find the strength to carry on and feed the fears with light; hold on to the seat because, like I said, it's going to be a fight. But I hope to meet you, when your healthy and healed, & you will silenty say to me - I did this, I am cured is this real? That day could possibly come; closer than I want- After all I am a disease and im fighting for my spot. I won't deny from my medical angle, I am close to losing the " incurable " battle.
It's not easy to diagnose because depending where the endometrial deposits are, the symptoms can be quite different. It's an unrecognized problem among teenage girls, and it's something that every young woman who has painful menstruation should be aware of ... it's a condition that is curable if it's caught early. If not, if it's allowed to run on, it can cause infertility, and it can really mess up your life.[Author Hilary Mantel on being asked about being a writer with endometriosis, Nov 2012 NPR interview]
Astray from a deep sleep chronic as I write by phonics, like insomnia I will always live the onyx night for revealing, and, upon it, still I'll steal the bright light of day right away just to keep building at speeds hypersonic.
Depression affects almost 80% of migraine sufferers at one time or another. People with migraine, especially chronic migraine, also are more likely to experience intense anxiety and to have suicidal tendencies. If we want to live happy and joyful lives with migraine, it is vital that we acknowledge and deal with the emotional realities of the disease.
And all my ethical reasoning crumbles to ash in the sheer fact of his presence. Because together, even in darkness, we light up a room; because the clotted guilt inside me breaks up and disperses before a surge of stupid happiness; because I love him, and I know I cannot leave him, am incapable of leaving him, unless he asks me to go. And he has not asked me. And that is the miracle which I live with, every day.
All parents set out with expectations, hopes and dreams for their child. When a child is diagnosed with a health problem, these aspirations are altered. While one parent is hoping to see their child graduate from university, another is praying that they can live pain free
Armed with my positive attitude and inherent stubborn nature, I keep my mind focused and my life moving forward. I stop to rest, pout and even cry sometimes, but always, I get back up. Life is giving me this challenge and I will plow through it, out of breath with my heart racing if I have to.
That’s the point. This healthy-feeling time now just feels like a tease. Like I’m in this holding pattern, flying in smooth circles within sight of the airport, in super-comfortable first class. But I can’t enjoy the in-flight movie or free chocolate chip cookies because I know that before the airport is able to make room for us, the plane is going to run out of fuel, and we’re going to crash-land into a fiery, agonizing death.
It never occurred to me that somehow women did know about it. It just never occurred to me. Yes I am wearing sneakers too. You are in a suit, I am comfortable. So when she explained to me that this was the first event really of its kind, it floored me. So I called my daughter who is in her 30s now and I said “do you know what endometriosis is?” She said, “what? Have to pack the pack the busters.”I said “no man, you have never heard of it?” No she said. I do not know what it is, and it occurred to me that my 30-year-old daughter who I told about endometriosis and it didn’t stick. If she didn’t know, and she is one of the hippest people I know, and her daughter doesn’t know, she has 19-year-old and she is a 13-year-old. The boy, we don’t care much about if he knows about it so much. There is other stuff for him to learn. Like how to roll a condom, things like that.You know, and it occurred to me that if they didn’t know that there were hundreds of thousands girls out there that don’t know. It is not because their mothers don’t want to tell them, because it’s not religion, it’s pure ignorance. We don’t know, we don’t have the information, we have it now, and so now is why this very first gathering is happening. Now is why we’re all sitting here looking really fabulous as you are...[Whoopi Goldberg on endometriosis awareness from the 2009 Blossom Ball]
We have a duty tonight. Everybody, and guys this for you as well because I know you know women. You have a duty tonight. You only have to tell one other person what you heard. Just tell them what you heard, or ask them have you ever heard of this? If the answer is no, share what you learn tonight.That’s all. You don’t have to do anything else. You just have to tell somebody else. You have to take whatever stigma people think that is there. You have to take it. It’s not male or female. It has nothing to do with that. It has to do with, here’s a disease you don’t know about and you need to know about it. It’s that simple. It’s not rocket science.[Whoopi Goldberg on endometriosis awareness from the 2009 Blossom Ball]
I wanted to relay a first hand experience to an audience possibly struggling to understand just what living with an autoimmune condition means,” Connery says. “It's a difficult journey and very much misunderstood by our friends and family – I hope this book can help to change that.
We can feel isolated and powerless when living with chronic illness, but what if your story begins to bridge the barrier or open a way for someone to connect? What if your story offers a glimmer of hope to someone standing at the edge of desolation? ...What if your story starts the conversation?
In late 1985, the Reagan White House blocked the use of CDC money for education, leaving the US behind other Western nations in telling its citizens how to avoid contracting the virus. Many Americans still thought you could get AIDS from a toilet seat or a glass of water. According to one poll, the majority of Americans supported quarantining AIDS patients.This heightened awareness set off waves of anxiety across the country, which was often express through jokes (Q: What do you call Rock Hudson in a wheelchair? A: Roll-AIDS!) and violence. Between the years 1985 and 1986, anti-gay violence increased by 42 percent in the US. Even in San Francisco, where Greyhound buses still dropped off gay men and women taking refuge from the prejudice of their hometowns, carloads of teenagers would drive through the Castro looking for targets.In December 1985, a group of teenagers, shouting “diseased faggot” and “you’re killing us all,” dragged a man named David Johnson from his car in a San Francisco parking lot. While his lover looked on in horror, the teenagers kicked and beat Johnson with their skateboards, breaking three of his ribs, bruising his kidneys, an gashing his face and neck with deep fingernail scratches.
Listen, I wanted to say, I don't need your judgment, okay? I have enough to deal with without you contributing, so can we just get on with this so I can get out of here?But I couldn't form the words. Dr. Johnson viewed me as a child, and somehow, under his contemptuous gaze, I had regressed to one. I was frightened and shy, and it was all I could do to answer his questions and count the seconds until the end of the visit.
We have a genuine and devastating epidemic of opiate abuse in this country, and it is of critical importance that this problem be addressed. But we must do so in a way that doesn’t cut off an effective (and often the only) treatment for the chronically ill, many of whom are able to function in this world at all only because of the small respite that responsible opiate use provides.
No one knows our bodies or our subjective experiences like we do. This means we can rest secure in our knowledge of ourselves and what we’re going through, even when the medical profession doesn’t understand or believe us. Migraine is a weird and changing disease. It affects all of us differently, and every attack is a little different than the one before. This means that no one can understand your life, symptoms, or illness like you can. This can be incredibly empowering: you are the expert. But, it also carries great responsibility: to live as happily and as fully as possible, you must listen to your body and trust your instincts.
Many empaths are diagnosed with chronic illnesses such as fibromyalgia, CFS, lupus, and various autoimmune diseases, as well as psychological disorders such as agoraphobia, social anxiety, ADHD, depression, sensory processing disorder, among many others.
No matter what stage of illness we are in, whether we’ve just been diagnosed or we have lived with chronic migraines for decades, there are adjustments we can make to increase joy in our lives and to live more fully.