Sometimes my body wakes me up and says 'Hey, you haven't had pain in a while. How about pain?' And sometimes I can't breathe, and that's hard to live with. But I still celebrate life and don't give up.

I never question God. Sometimes I say, 'Why me? Why do I have such a hard life? Why do I have this disease? Why do I have siblings who died?' But then I think and say, 'Why not me?

I think I may have to grow up without growing old. I think we're going to have to define differently what I'm going to be. We're going to have to define my growing up differently.

Maybe I wanted to have kids because you want to leave behind lessons, leave behind everything that matters to you. That's how you touch the world. But I have to reconsider what it's like to leave a legacy.